Chaos to Cosmos
The path from chaos to cosmos was discovered by telling one's life story

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Sunday, 12 May 2019

International ME/CFS Awareness Day

Tiverton Town Hall lit up in blue for International May 12th Awareness Day

at May 12, 2019
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Labels: Myalgic Encephalomyelitis (ME)
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  • Preparing to go on holiday with ME
    The park I nearly saw on our last aborted outing. Now, I'm trying very hard not to be one of those first world people who feels "e...
  • Another foggy day
    With fibromyalgia  and myalgic encephalomyelitis , some days the pain is the worst symptom, others it's the fatigue and on others, it...
  • The Great Toilet Paper Debate
    This is the correct way!  Toilet roll debate finally settled. A patent dating back to 15 September 1891 helpfully included a detailed diagra...
  • Myalgic Encephalomyelitis Disability Scale
    This is an adaptation of the Expanded Disability Status Scale (EDSS) , which is used throughout the medical profession. This scale is shown ...
  • Bad Cattitude
    There are very few creatures on this earth that I can't get along with or can say I dislike - except the type that slither and crawl and...
  • Funerary Fiascos
    My mother managed to put the 'fun' back into funeral. For the record and the sake of my sanity , I will detail the fiasco of my moth...

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“ME is a neurological condition, it is a fluctuating life limiting condition that affects every part of the patient’s life.”

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