Chaos to Cosmos
The path from chaos to cosmos was discovered by telling one's life story

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Sunday, 12 May 2019

International ME/CFS Awareness Day

Tiverton Town Hall lit up in blue for International May 12th Awareness Day

at May 12, 2019
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Labels: Myalgic Encephalomyelitis (ME)
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  • ME Symptom Diary: April 2011
    Bristol Dental Hospital cc-by-sa/2.0  - ©  Thomas Nugent  -  geograph.org.uk/p/2597942 Friday, 1 Apr 2011 Rough night with pain – from outin...
  • 50 Years with Myalgic Encephalomyelitis (ME)
    This cat looks how I feel, mostly. If you want to know what long haul feels like, just ask me. In 1973, at 16, I got Glandular Fever ( Infec...
  • Going Potty
    Well, I've had one of the most unpleasant days I've ever had and, that's compared to most days being pretty damn shitty to begi...
  • Finally a medical diagnosis
    Finally, yesterday, after around 11 years of having no access to medical care and at least 35 years of worsening symptoms that have been ign...
  • Funerary Fiascos
    My mother managed to put the 'fun' back into funeral. For the record and the sake of my sanity , I will detail the fiasco of my moth...
  • ME Symptom Diary: August 2011
    Monday, 1 Aug 2011 Feel ‘effin crap again. Still got flu-like symptoms and inflammation that is notable in my hands and knees. Pain levels a...
  • 30 Things About My Invisible Illness You May Not Know
    My contribution for Invisible Illness Week . 1. The chronic illness(es) I live with are: ( with confirmed diagnoses ) (1)  Myalgic Ence...
  • Saturday, 16 May 2009
    Around mid-morning, there was sudden loud noise from a pneumatic drill and I looked outside to see a lorry from the water company and someon...
  • Myalgic Encephalomyelitis Disability Scale
    This is an adaptation of the Expanded Disability Status Scale (EDSS) , which is used throughout the medical profession. This scale is shown ...
  • Synchronized Sunday ...
    Kitty and Balu At Artsy Catsy they do Synchronized Sunday Sleeping , quite elegantly . What do they do in my house? About 1 1/2 seconds afte...

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“ME is a neurological condition, it is a fluctuating life limiting condition that affects every part of the patient’s life.”

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