Chaos to Cosmos
The path from chaos to cosmos was discovered by telling one's life story

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Sunday, 12 May 2019

International ME/CFS Awareness Day

Tiverton Town Hall lit up in blue for International May 12th Awareness Day

at May 12, 2019
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Labels: Myalgic Encephalomyelitis (ME)
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    What is it that makes some people think that they're entitled to their ill-informed opinions, which, when voiced, are clearly a cause of...
  • 50 Years with Myalgic Encephalomyelitis (ME)
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  • ME Symptom Diary: February 2011
    Perch style bus stop: utter torture and adds inaccessibility to disabled people. Tuesday, 1 Feb 2011 Stood up for no longer than 2 minutes –...
  • Funerary Fiascos
    My mother managed to put the 'fun' back into funeral. For the record and the sake of my sanity , I will detail the fiasco of my moth...
  • ME Symptom Diary: July 2011
    Float before the Bourne Free Parade 2011 Friday, 1 Jul 2011 Usual post-outing problems with pain in legs and feet; back hurts badly, I feel ...
  • Gut instincts
    Too much info perhaps, but for the last few weeks I've alternated daily snacks of dried figs, prunes and apricots ... on top of veg, fr...
  • ME Symptom Diary: August 2011
    Monday, 1 Aug 2011 Feel ‘effin crap again. Still got flu-like symptoms and inflammation that is notable in my hands and knees. Pain levels a...
  • Going Potty
    Well, I've had one of the most unpleasant days I've ever had and, that's compared to most days being pretty damn shitty to begi...
  • Mushroom Hunting Expedition
    Not the mushrooms I hunted. What you should be seeing here are a few photos from the mushroom hunting (or fungi forage) expedition I went o...

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“ME is a neurological condition, it is a fluctuating life limiting condition that affects every part of the patient’s life.”

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